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Issue:- 22 May 2014

Patient urges local people to sign up to clinical trials database and get involved in medical research

A patient at the Royal is calling on people across Merseyside to get involved with clinical trials to ensure medical advances can benefit generations to come.

Wavertree resident Lovemore Zindoga, 42, says;- "Without volunteers taking part in clinical trials, medical advances would come to a halt."

Lovemore recently took part in a clinical trial after signing up to a clinical trials database at the Royal Liverpool University Hospital called Consent 4 Consent.

The database, developed by our Research, Development and Innovation department, informs people of clinical trials taking place in our hospitals that they may be eligible to take part in. Once recruitment starts for a trial, those eligible will be contacted and asked whether they would like to take part. Around 1,250 patients have agreed to sign up to the database, along with 2,000 healthy volunteers, but the Trust aims to have 10,000 volunteers registered to take part in future trials by the end of the year.

Following kidney failure, caused by hyper tension, Lovemore has been coming to hospital for dialysis 3 times a week for four hourly sessions. "The care I receive on dialysis is excellent, but I wish it could be simpler. I would often talk to other patients and nursing staff about how great it would be if future medical advances could make the process easier for patients.  One of the nurses talked to me about Consent 4 Consent and I agreed to sign up. The process was very easy and about a year later a clinical trial came up that I could take part in.  The trial was for a drug to improve the care of diabetes. It had already been tested on humans but had caused mild side-affects and after it was modified they needed patients with kidney failure to test the new version on.  The doctors explained everything to me and I felt very safe taking part in the trial at the Royal. The trial lasted for 2 months and I was very well looked after. I stayed in the Clinical Research Unit at the Royal for the first 3 days on 2 occasions and then came back as an outpatient for routine observations. Everything went well and there were no adverse effects."

Explaining why he signed up for Consent 4 Consent, Lovemore says:- "Years ago dialysis would take 8 or 9 hours, but because people in the past took part in clinical trials this can be done in half the time, benefiting people like me. I want to help future generations to benefit from medical advances that can help make their lives better."

Lovemore adds;- "Trials like these benefit the whole of mankind, but they can only be possible with volunteers. I would encourage others to sign up to Consent 4 Consent and help advance medical science."

Consent 4 Consent is a new database that makes it easier for people to get involved in clinical trials at the Royal. Signing up does NOT mean you are agreeing to take part in trials, but that you are interested in hearing about what studies you may be able to take part in.

Dr Richard Fitzgerald director of the Royal's Clinical Research Unit, said:- "We have over 400 clinical trials running in the hospital at any one time in 40 different departments, so there are always opportunities for people to help improve the future of healthcare. Also as research grows in Liverpool, with the development of the new Bio-Campus planned for the near future, the need for more volunteers will increase.  Trials not only help patients currently treated by us, but could potentially change the way our patients, and thousands of others receive care in the future. Taking part in trials could also potentially benefit the lives of people taking part in trials, improving their own healthcare and finding treatments that could directly benefit themselves."

If you would like to know more about Consent 4 Consent and clinical trials taking place within our hospitals, contact the Research, Development and Innovation team on:- 0151 706 4860 (8am to 4pm) or email:- C4C@rlbuht.nhs.uk.

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